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US National
Institute for Neurological Diseases
(NINDS)
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The mission of NINDS is to reduce the burden of
neurological disease—a burden borne by every age group, by every segment
of society, by people all over the world. Its practical tasks in
achieving its aims:
- Conducts, fosters, coordinates, and guides
research on the causes, prevention, diagnosis, and treatment of
neurological disorders and stroke, and supports basic research in
related scientific areas.
- Provides grants-in-aid to public and private
institutions and individuals in fields related to its areas of
interest, including research project, program project, and research centre
grants.
- Operates a program of contracts for the funding
of research and research support efforts in selected areas of
institute need.
- Provides individual and institutional fellowships
to increase scientific expertise in neurological fields.
- Conducts a diversified program of intramural and
collaborative research in its own laboratories, branches, and clinics.
- Collects and disseminates research information
related to neurological disorders.
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Chemical Survivors
Foundation
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A website
dedicated to information for people with chemical sensitivities and
chronic fatigue conditions, in Scotland and the UK. Contains links,
articles and research links on a variety of items including Gulf War
Syndrome.
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AVM (Arterial venous
malformations)
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AVM
Support UK This is a UK support site set up by Jan Harrington,
who has had an AVM herself and wanted to find out more. Guest book
and message board for your personal reviews, as well as links to other
informative sites both in the UK and elsewhere.
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Brain Research
(Ireland)
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Brain
Research is the only registered Irish charity (CHY No 7020) dedicated
to raising funds to support research and teaching of central nervous
system disorders in the Republic of Ireland and Northern Ireland. At least
half a million people on the island of Ireland are affected directly or
indirectly by these illnesses. The organisation is dedicated to finding
the cause, causes of, and treatment for complex chronic diseases, which
prematurely destroy brain function and the central nervous system. Their
focus is on Epilepsy,
Stroke, Head
Injury, Schizophrenia,
Multiple
Sclerosis, Parkinson's
Disease, Brain Tumour and other Neuromuscular Disease.
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UK
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UK GP-run website covering many aspects of
health. Has links
to neurological support groups in the UK.
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ARMS MS Therapy Centre
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There is an MS Therapy Centre in Wick which
has a hyperbaric chamber and other facilities.
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Stuart
Resource Centre, Aberdeen
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The Stuart Resource Centre is an information,
therapeutic and social resource for people with multiple sclerosis,
families and friends. The centre is funded entirely by the Aberdeen Branch
of the MS Society.
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Epilepsy
Website for Healthcare Professionals
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ISABEL is a sophisticated paediatric
clinical decision-making support system designed as a near-patient working
tool for doctors, nurses and health care workers
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Scottish
Parliament Cross-Party Group on ME
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This is a link to the Scottish Parliament's website
giving details of meetings of a consultative group meeting to discuss
issues surrounding ME. It includes members of the public suffering
from ME, as well as representatives of support groups. If there is
any significant outfall from this we will publish it on the ME page as a
special link.
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www.thirdaid.com
- Website for uniting people with same medical condition
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This is a relatively new website aimed at uniting
people by medical condition, letting them contact fellow sufferers
anonymously for support or tips, although its founder Sarah Frost, from
Buckinghamshire, stresses it does not provide medical advice.
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Tremor
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There is an excellent UK site
for anyone affected by tremor of whatever origin. It has sections on
medications, causes of tremor, coping strategies and other useful
links. Definitely worth a visit.
This US site
is also worth a look as it gives a lot of information about coping with
one of the most frustrating types of tremor - essential tremor, which can
be very debilitating.
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