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http://www.epilepsy.org.uk
Issue 154 - 2 July 2003
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Welcome to Epilepsy Action's email newsletter, delivering epilepsy
related
news direct to your inbox.
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NEWS
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Report Suggests Many Adults Could Be Free From Epilepsy Medication
http://www.epilepsy.org.uk/news/index.html#Free
Failure To Take Prescribed Medicine Is "Massive World-Wide
Problem"
http://www.epilepsy.org.uk/news/index.html#WHO
Thousands Of Carers At Breaking Point Due To Lack Of Support Says
Charity
http://www.epilepsy.org.uk/news/index.html#Carers
Think Tank: UK Government Must Do More To Get Disabled People Into Jobs
http://www.epilepsy.org.uk/news/index.html#Jobs
Medicines Watchdog "Must Do More" Claim MPs
http://www.epilepsy.org.uk/news/index.html#Watchdog
Technical Tip: If you see the previous edition's news stories when
clicking
on the links above, hit F5 to refresh your browser and the latest
stories
should appear.
When the next edition of the newsletter is issued, the stories above
will be
archived. After that date you'll be able to find these and earlier
news
stories at http://www.epilepsy.org.uk/news/archive.html
TELL YOUR FRIENDS ABOUT THIS NEWSLETTER: Visit
http://www.epilepsy.org.uk/newsletter/mail.cfm?email=info@nervecentre.org.uk
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FLORA LIGHT CHALLENGE FOR WOMEN
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This year for the first time there will be two Flora Light Challenges
for
Women.
The traditional venue of London's Hyde Park will be joined by a brand
new
course running through the city centre of Birmingham. Both events are to
be
held on Sunday 14 September 2003.
If you'd like to take part and raise money for Epilepsy Action, then
please
visit http://www.epilepsy.org.uk/involved/floralight.html
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TAKE ACTION
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In the recent UK government reshuffle, a new minister with
responsibility
for long term medical conditions (including epilepsy) was appointed.
Dr
Stephen Ladyman MP has replaced Jacqui Smith at the Department of
Health.
Epilepsy Action is urging people in the UK to tell Dr Ladyman how
inadequate
services currently are and how much more than what is included in the
recent
Government Action Plan is needed to be done by the government - both to
improve to the level of services for the hundreds of thousands of people
with epilepsy in England, and to reduce the number of potentially
preventable deaths from epilepsy occurring each year.
Find out more about the Action Plan and Epilepsy Action's response,
along
with contact details for Dr Ladyman, at http://www.epilepsy.org.uk/action
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PRESS RELEASE EMAIL SERVICE
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As a service for journalists, reporters and news organisations, Epilepsy
Action press releases can be emailed direct to your inbox. Sign up
by
visiting http://www.epilepsy.org.uk/press/email.html
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BEA-CONNECT
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If you would like to chat to other people about your epilepsy, why not
join
our online community - BEA-Connect?
There are thousands of postings covering a wide range of epilepsy
issues.
You can also make use of the other features like he electronic diary to
record your seizures, or email other community members.
Membership is free, and if you are a member of Epilepsy Action you can
sign
up online now!
What the members think...
"I am not so glum about it. I feel happier in general, because
there are
people I trust to talk with very openly. If I am depressed people are
very
encouraging. When I am having a particularly bad time of it they help me
realize that I will come out of it and feel better later. I have
acquired
two e-pals from BEA-Connect with whom I exchange notes almost every day.
When I need an opinion informed by experience they are there, and that I
can
be there for them helps me find value in my experiences in living with
epilepsy. My self-esteem is enriched and the lurking and skulking
dreaded
seizures shrink in size a bit."
For full details about the community and membership details, please take
a
look at our website http://www.epilepsy.org.uk/connect
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BOOKS, CDS, VIDEOS, DVDS AND SOFTWARE
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If you would like to buy any book, CD, software package, video or DVD
whilst
showing your support for Epilepsy Action you can buy them via our
website
through Amazon.co.uk. Epilepsy Action will receive up to 15% of
the price
for each purchase you make. Visit http://www.epilepsy.org.uk/mall/amazon
This week's top 5 best-selling epilepsy books on Amazon.co.uk:
(click on these links and buy, with up to 15% of your purchase price
going
to Epilepsy Action)
Coping with Epilepsy (Overcoming Common Problems) by Fiona Marshall and
Pamela Crawford
http://www.amazon.co.uk/exec/obidos/ASIN/0859698246/britishepilepsya
Epilepsy: Patient and Family Guide by Orrin Devinsky
http://www.amazon.co.uk/exec/obidos/ASIN/080360498X/britishepilepsya
Handbook of Epilepsy Treatment by Simon Shorvon
http://www.amazon.co.uk/exec/obidos/ASIN/0632048492/britishepilepsya
The Ketogenic Diet: Treatment for Epilepsy by John Mark Freeman, et al
http://www.amazon.co.uk/exec/obidos/ASIN/1888799390/britishepilepsya
Epilepsy - A Holistic Approach by Caroline Thomas
http://www.amazon.co.uk/exec/obidos/ASIN/1897817096/britishepilepsya
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Questions About Epilepsy?
Visit our website: http://www.epilepsy.org.uk
Email the Helpline: helpline@epilepsy.org.uk
Phone the Helpline: 0808 800 5050 (UK), +44 113 210 8850 (International)
Published by Epilepsy Action
New Anstey House, Gate Way Drive, Yeadon, Leeds, LS19 7XY, UNITED
KINGDOM
Epilepsy Action is the working name of British Epilepsy Association
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