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For one
to one support from the ME Association, click on this link
The following
information is from the AYME website (see UK Support
Organisations)
Common
Symptoms of M.E (from
ME Website)
- Fatigue.
The most common feature for diagnosis is persistent fatigue - a
fatigue unlike anything that has been experienced before and quite
unlike the usual tiredness that one might feel after a busy day.
Although fatigue must be present for a diagnosis, it isn't
necessarily the worse symptom (as can be seen in the OU/AYME
report 'Speaking Up') The fatigue will last for days or months
following moderate effort and is not refreshed by sleep, in fact
the patient often feels much worse in the morning.
The fatigue may be physical or mental, can be severe and often
fluctuating, and leads to significant reduction in normal
activities.
Dr. David Bell, pediatrician and expert in M.E. explains that the
fatigue may appear as 'orthostatic intolerance' (dizziness or
faintness when upright) rather than simple tiredness or
sleepiness.
- Severe malaise (feeling
'poisoned'), particularly following physical or mental exertion.
- Persistent
headache, which does not respond well to painkillers.
- Disturbance of
normal sleep pattern. Hypersomnolence (sleeping almost
constantly) is commonest initially, often progressing to sleep
reversal (sleeping during the day and awake at night), or else
insomnia.
- Neurological (brain)
disturbance is invariably present (e.g. loss of attention,
concentration, and short-term memory, forgetting names, inability
to understand a written paragraph).
- Visual
disturbance (eye pain, blurring, especially when reading).
- Sensitivity to
sound and/or light.
- Recurrent sore
throat and/or swollen glands.
- Muscle or joint
pain,. The pain can be anywhere, although the worse pain is
generally in the lower back and/or lower limbs. This pain can be
very severe indeed and often not responsive to painkillers.
- Nausea,
abdominal pain, loss of appetite.
- Balance
disturbance, or dizziness on sudden change of position.
- Altered
temperature regulation (feeling cold in summer/hot in winter)
- Facial pallor,
especially with the onset of severe fatigue.
- Altered skin
sensitivity, (sometimes feels like something crawling on the
skin. Very sensitive to touch) numbness, tingling in arms and
hands.
- Mood changes (irritability,
depression, anger and frustration) that are out of character.
A marked feature of
ME is the fluctuation of symptoms from day to day, and the
tendency for relapses and remissions over months. There is a
combination of key symptoms that is remarkably similar from
patient to patient: fatigue after minimal effort, malaise (feeling
very ill) and cognitive (thinking) dysfunction are invariably
present. It is important for medical professionals to recognise
the multiplicity of symptoms that commonly occur, as well as
'fatigue'.
Dr. David Bell states that the cause of M.E. is generally a viral
illness which then has three factors which keep it going for
months and years in a vicious circle:
- Dysfunctional
Immune System
- Dysfunctional
Autonomic Nervous System
- Resultant Low
Blood Volume
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M.E. Stands for Myalgic
Encephalo myelitis
Myalgic -
means muscle - indicating the pain involved in the muscles.
Encephalo -
means brain - indicating that the brain functioning is involved.
myelitis -
means inflammation of the spinal cord and does not occur in M.E.
so 'pathy' ( Myalgic Encephalopathy ) is now being used
instead which means 'sickness' or 'illness'.
(Many general practitioners prefer to use
the term chronic fatigue syndrome.)
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